I’m sure by now you have heard that it is Shark Week, right? The Discovery channel is airing dozens of slots of shark-related programming, and I have found myself DVR-ing episodes that go into great detail about shark sightings, shark attacks, and all other subjects in which sharks and people do not mix. I cannot NOT watch this stuff! Am I afraid of sharks? Yes, yes I am. The thought of them gives me an uncomfortable tightness in my stomach. Seeing footage of gaping mouths of teeth–even though they are safely contained in my TV–makes me shudder. I have nightmares about being chased by a shark, or having one use me as a chew toy. That Bruce character in Finding Nemo freaked me right out. I have never seen Jaws and I think it is safe to say that I never will. I have to look away when they show the “scary” or “gruesome” parts during Shark Week. On public television. Aimed at educating children. “Scary” to me basically means anything where teeth or jaws or blood is involved, which means I spend most of any given program with my face buried in my hands. Four year olds see more of Shark Week than I do. Have I ever met a shark? No. Have I even seen one in the flesh? Um, no. Not really. Baby-sized ones that are sometimes kept in an aquarium, yes, but never a “real” shark, the kind that could chew your arm off. Does this make my fear of sharks slightly irrational? Uh, yes, probably. I live in a landlocked, desert state; the chances of me coming face-to-face with a hungry Great White Shark are minimal/non-existent. I am SCUBA certified, but I have never gone diving in the ocean. In fact, when hanging out on an ocean beach I rarely get in the water at all. I don’t really care for salt water in my eyeballs/on my face, and the chance of coming into close quarters with a) clingy seaweed, b) stingy sea creatures, or c) sharks, is more of a risk than I am willing to take. I’d much rather hang out on the beach with my nose in a book, carefully tucked up under an umbrella with a sundress covering me shoulders-to-my-knees and the rest of my body completely slathered in SPF 85. Sexy, no?
Ha! No. Not really. Well, not in the way that any advertisement, fashion or beauty magazine published in the last 80 years would lead you to believe.
The thing is, do you want to know what scares me more than sharks? (And bobble-head dolls, but that is another post entirely.)
Tan lines.
Sunburns.
My sensitive dermis baking under sweet, sweet, sunshine.
Melanoma.
Skin cancer.
Like many children, I had white-blonde hair as a kid. Unlike most of those children, when I grew up my natural hair color never really darkened and still hovers in the distinctly “platinum” part of the color wheel. My skin is a fair, creamy white and mostly freckle-free. My foundation color is “parchment” for heaven’s sake. I’m a pale person. And unlike many people who share my coloring, I don’t make any efforts to darken my pasty-white skin. I have never been inside a tanning bed. I have never “laid out” or gone sunbathing. I am terrified of the idea of getting “that healthy glow” or even “a little color.” I don’t know if I can properly convey the fear I associate with my own skin being a “healthy”, “sexy” bronze shade, or, frankly, a shade that can be described by any color not resembling printer-paper.
You probably think I am overreacting. I’m not. I’m not being irrational, or even overly fearsome. Allow me to explain:
About 25 years ago the University of Utah–a premier research institution, particularly in genetics–did a massive study to see if there was any genetic linking to skin cancer. (The short version: there is.) For several years they studied hundreds of families, choosing ones who had multiple cases of melanoma. My mom’s family was chosen. My dad’s family was chosen. As a result, all of us kids were tested; I was 3 but I still remember that day. My oldest brother was 13 at the time and the researchers were shocked–SHOCKED–to discover a chunk of skin cancer on his shoulder. He was the youngest person to ever be diagnosed with skin cancer; it was such a big deal that it made the cover of the Wall Street Journal, and his case was the subject of professional medical conference keynote addresses for years. THE COVER OF THE WALL STREET JOURNAL!! It was is a Big. Freaking. Deal. Yes, this was twenty-five years ago and in the years since there have been more cases of skin cancer discovered in younger children (a trend that is disturbing enough on it’s own), but please understand that this very real, tangible fear of inherited skin cancer has been ingrained in me–and for good reason–for the last two and a half decades. I am a carrier of the melanoma gene. I inherited it from both my mother and father. While I have always had regular check-ups with my dermatologist, have gone back to the University of Utah for follow-up studies, and I have been vigilant in sunscreen application; I am still scared.
Ten years ago I had two moles taken off my head in a routine check-up, one came back positive for melanoma. I was 19. I hadn’t had a sunburn or even a tan line in at least six years. But there it was. Cancer. On my face. Can you imagine your 19-year-old self? Now imagine her going to the doctor by herself to be scrutinized head to toe and everywhere in-between for questionable moles. Imagine the doctor carefully cutting off a few tiny bits of her face because they looked “a little suspicious.” Now imagine 3 days later–Dec. 23 2002 at 4:30 pm, to be exact–when the doctor calls her to tell her that the moles were malignant and cancerous and “I am having my office staff come in from holiday on Dec. 26, first thing in the morning to cut out some more of your face. We need to make sure we get it all.” Imagine that 19 year old girl sobbing into the phone, thinking she is far too young to have to deal with this kind of news. (I still get choked up when I think about that phone call. The fear was palpable then, and even now it makes me breathe faster and my chest become tight.) I am lucky, my dermatologist caught my case really early and was able to cut out the offending pieces of my face, his plastic surgery skillz left only one small scar near my hairline that is hard to see, even if I point it out. I didn’t have to go through chemo or radiation or spend months of my life in a hospital. Yes, I am lucky; or more accurately, I had been vigilant my entire life, luck really had nothing to do with it. Even so, it was still far too close a call for me to be willy-nilly with the sunbathing and beach time. Like, ever.
I wear sunscreen every single day, even if all I’m doing is walking from my house to my car to go to work. SPF 30. Every day. No matter what. (Except that one time I forgot, I am still kicking myself for that. In fact, just thinking about it gave me a knot in my stomach.) Outdoorsy activities will have me bump up the SPF to 45 or 65, with 85 on my face and shoulders. (I don’t want to hear any arguments about how “oh, anything after SPF 30 doesn’t make a bit of difference.” I. Don’t. Care.) (And who made you an expert on hereditary melanoma anyway? I’d like to see your degree and credentials.) (Also, to all former boyfriends–you know who you are–who cruelly and publicly mocked my beach wear, with full knowledge of my genetic misfortune and medical history, I hope you get testicular cancer and have to go through life as a One-Balled Wonder.) (And to the irritatingly, insipid women who make fun of my summer sleeves and long skirts–especially those claiming to have also had skin cancer but not caring about getting sunburned–you are ridiculously stupid, shallow and naive. And douchebags. Sadly for you, getting a tan won’t eliminate any of those qualities. *smirk* I hope you have gross, permanent sun spots on your face and hands by the time you’re 30.) (/rant.) (Man, it feels good to finally get all that off my chest!) (/parentheticals.)
I have been told by my doctors–ones who are experts on my skin, genetic skin cancer, and my family history–that even if I live in a cave for the rest of my life with absolutely no sun exposure whatsoever and develop those creepy, beady-white, cave-dwelling-eyes, I will still contract melanoma again by the time I’m 40. Cancer. Again. Sometime in the next 10-15 years. No matter what. On the upside, my team of dermatological experts tell me that my lack of tanning will make me have fewer wrinkles and clearer, smoother skin as I get older. So I suppose when I’m 40 and going in for Round Two (or three) of having skin cancer removed from my body the medical staff will think I’m only 29. Hey, at least I have something to look forward to! So, while you and your blessed olive skin can prance around the beach or pool in SPF 4 (now with coconut oil!) and a teensy little bikini without a care in the world, I’ll stick with the SPF>45 and a drop cloth. I am not olive, or brown, or tan, or even beige. I am pale, the color of parchment, and always will be. And my bikini has never seen the light of day. True story. It has taken itself–and me–out for some night swimming on several occasions. But obviously in a pool and not the open water, because–honestly, don’t you ever watch the Discovery channel?–night time is prime feeding time for large, carnivorous fishy creatures who are drawn to white, glowing, reflective surfaces (see: heidikins’ entire body) and WHAT ABOUT THE SHARKS!?!)
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Oh thank heavens SOMEONE else out there “gets it”.
I didn’t know for the absolute longest time (19-20 years) the risk that I was put at when God blessed me with creamy milky porcelain skin.
When I was a kid, I’d sleep in my swimsuit (a bikini) and run out into the pool the second I’d finished my glass of OJ. No sunscreen. I’d burn, and then it would turn into a tan. I’d spend the entire summer baking my poor little dermis.
When I was in middle school girls would grab my wrist and ask me if I had a pulse. (I was so pale I looked like a corpse, apparently.) I was mocked for the blue-green veins visibly coursing blood under my skin. Even on my most rested days as a young teenager you could see the bruise-like impressions of blood under my eyes.
In high school I baked myself under the tanning bed lights. I was popular and well-liked and I didn’t have a reason to be mocked any more. I had skin like a burnt cookie and youth disguised the damage I was doing. I went to the Caribbean and risked SPF15 as I lay under the newly-scorching (much stronger than Michigan) sun.
Somewhere around 20 or 21, I realized. My great-grandmother DIED of melanoma. I remember the sores across her skin, how it metastasized below her skin, into her body and poisoned her. I realized those scars on my Grandpa’s face were from huge portions of his skin being hacked out in chunks to fight the spread of that same poison.
I stopped looking at my pale skin as a curse. I started using sun screen. I looked for products that contained sun screen, researched the best ways to protect myself. I came to realize that my long VERY pale legs and pale face was even more beautiful than the tan-to-a-crisp women I see everywhere.
Now I see moles. Growing larger, less uniformly shaped. Stranger and stranger colors. Now I have to start paying the price. This is when I get to play catch-up and hope that somehow I didn’t do enough damage to get the poison. Melanoma. That prevention and early detection are enough to keep me from more and more grueling and exhausting treatments. This is when I get to spend the rest of my life hoping my skin doesn’t one day kill me.
Sure, I get the taunts. People laugh at my hats, my baby sunblock, the sunscreen I’m vigilant about reapplying. The color of my foundation (palest pale, of all things).
But now I’m fighting, now I’m aware of the danger. Clear, youthful skin is only a small bonus to the battle I’m waging against my largest organ.
I apologize if I’m being dramatic. It is just such a relief to know that there is someone out there who understands the fear, the day-to-day realization of what we face.
Now, sharks? Well, you’d have to get me into open water first. Andthat’sjustnothappen’.
Comment by kaymar1e 2011 August 3 @ 6:49 amThank you so much for sharing this, really, it’s refreshing to hear someone who thinks the way I do regardless of what’s popular or trendy or “normal.”
xox
Comment by heidikins 2011 August 3 @ 10:50 amSpeaking as the only person here who is most probably whiter than you are, there is noting at all irrational about fear of the sun. I know all too well. I’m like a vampire in daylight, and not the sparkly Twilight type of vampire either, but the traditional burst-into-flames kind. And although I am not a carrier for melanoma, I have that exact same fear.
Sharks… not so much.
Comment by Sov 2011 August 3 @ 7:46 amPS. I can personally vouch for the 40 looking 29 thing. Ask anyone that knows me.
Comment by Sov 2011 August 3 @ 7:47 amThere is supposed to be more to this. Weird. Anyway, the whole thing says: “PS. I can personally vouch for the 40 looking 29 thing. Ask anyone that knows me. Staying out of the sun will keep you young.”
Comment by Sov 2011 August 3 @ 7:54 amFar more rational than my fears. Even the shark ones.
Next time I wear a bikini, I’ll think of you.
Comment by SR Braddy 2011 August 3 @ 8:50 amI want pictures or it never happened!
xox
Comment by heidikins 2011 August 3 @ 10:51 amYou need an indoor swimming pool with UVA coated windows in order to enjoy that bikini.
Then you and can laugh at all of the wrinkled, leather saddlebag-looking women.
Comment by K 2011 August 3 @ 10:15 amRight? When I “grow up” and have a real house/apartment, UVA-coated indoor pool goes on the list. Also, a dishwasher. And an air conditioner. And washer/dryer in my apartment. Some of these are clearly going to happen before others.
xox
Comment by heidikins 2011 August 3 @ 10:52 amYou are like my husband: blessed by the miracles of modern science! It SUCKS to have to deal with this, I’m certain, but on the other hand, what a blessing that you can know and taken every precaution.
While I have no idea if we have the skin cancer gene in my family, I don’t really like hanging out in the sun anymore. I especially can’t stand it on my forehead. I’ve taken to wearing big floppy hats whenever I am outside for any length of time.
What I really want to know: what kind of sunscreen do you use on your face? I’ve been using the Neutrogena, which is pretty non-sticky, but then I feel like I’m missing out on moisturizer during the day too. Any product recommendations???
Hugs.
Comment by Amy So 2011 August 3 @ 10:43 amI’ve used Aveeno Baby, I’ve used Coppertone, I’ve used Neutragena, and I’ve used a sunscreen by Clinique. I moisturize at night (Aveeno Night Cream) and rarely need additional moisturizing during the day. Aveeno Baby seemed really oily to me, I was glad when that was used up. For more outdoorsy/sweat-inducing activities, I usually go with Coppertone SPF 85. For daily stuff I go with Clinique or Coppertone SPF 30.
xox
Comment by heidikins 2011 August 3 @ 10:55 amWhen we went on our cruise last year I was appalled at how many young women were lying out in bikinis right next to leather-skinned middle-aged women. I wanted to go up and shake them and say, “Don’t you see what’s going to happen???? Leather skin is NOT pretty!”
I am quite pale, and my dad had a history of skin cancer (though nothing too serious). I am fairly vigilant about skin protection, but not vigilant enough.
Comment by Sherry 2011 August 3 @ 11:51 amMy dad has a history of skin cancer, and I’m in your pale club. I can’t count the number of times I’ve bought the palest shade of makeup and it’s STILL too dark! I always wear sunscreen on my face as part of my routine, and now you’ve motivated me to wear it all over.
Comment by Tia 2011 August 3 @ 2:42 pmOh, how I’ve missed your blog! I think you are beautiful! I really think it is admirable that you take such precautions to protect your skin. There is nothing wrong with it and you’re not overreacting. You are being as safe as you can. My dad has had several melanoma spots removed so I’m predisposed to likely have some as well eventually… I’m trying to reduce that as well. We may be white, but we are white and proud! *hugs*
Comment by Mikael 2011 August 3 @ 10:09 pmThis was an excellent post. I like it when you are ranty. And, you inspire me to not worry about white legs. Because as long as you pick out my clothes no one will be looking at my skin.
But when we were in highschool I had a teacher who teased me about my white skin. A TEACHER! He would crumple my papers before he put them on my desk, and call me out in class, and everytime the lights went out for the projector slides he’d make fun of my skin glowing in the dark. But it was the crumpling up of my papers before he put them on my desk that was the worst.
Comment by pinksuedeshoe 2011 August 3 @ 10:11 pmOk somehow we must be related!
To use an old Billy Conlly joke, “I’m not really white, I’m kinda a pale blue colour”
I’m not blond but I have red, ginger, tision coloured hair, very pale milky skin with freckles & green eyes! (why mension green eyes, well apprently it make me even more likely to be prone to skin cancer)
I’m about to be 40 but apparently look late 20’s early 30’s (when I was younger I always found it hard to get into night clubs or even cinemas because I looked so much younger than my friends who were mostly 2 or 3 years younger than me! finally it’s paying off)
When I was young they didn’t tell you about skin cancer, I stayed out of the sun mostly because I burnt & then ended up in hospital! I don’t tan! I have burn a few times as a kid, and I’m afraid I did try & get a tan, even using sun beds when I was a teen (trying to fit in can kill you) but none of it really worked so I gave up trying, that’s when all the news about skin cancer came about!
I too am hoping that I didn’t do any real lasting damage, I’ve been teased & bullied about the colour of my hair & skin all my life, even now! (red heads are the last minority that it’s ok to make cruel & hurtful jokes about & not get into trouble for discrimination, well at least over here it is)
I used to get my x to check my back & other bits I couldn’t see but I’d better get my doc to refer me to a specialist just for a check up, with my freckles you could be playing dot to dot for days!
And sharks I get that, I’m terrified of one being in the chlorine filled swimming pool!
And I know that’s daft they would die but that’s fear for you!
oh I did watch Jaws & cried becase they killed the shark! But I was about 6 I think
Keep up the good work, great way to kick my but to get it checked out again, with everything else going wrong I needed to rememeber to look out for my self a bit more!
Seeya hugya G
Comment by grungedandy 2011 August 6 @ 5:33 amI’m not as fair as you, but I wish I’d been more careful with the sunblock about 25 years ago. I slather on the SPF 50 whenever there is sun to be had and do everything possible to avoid a burn. I will never have a ‘pretty’ tan, so it’s not worth the risk to me either. I visit the dermatologist every six months. Cancer is nothing to mess with. Any any bimbo in a bikini who tells you that white legs are ugly is not worth the time of day.
xo -E
Comment by Elizabeth 2011 August 30 @ 10:25 pmI understand your fear. It would be a lie or overly dramatic to say that I ever have felt the horror and shock of such a diagnosis like you had. Let’s say, I had a little taste of it when I felt a lump in my right breast at the age of 25. At that very moment I had such an incredible fear of dying. The doctors never did a biopsy and all I got was “It’s probably benign”. Well, probably just isn’t good enough for me when it comes to cancer. I walked around with this lump in my breast for three years, feeling it grow more and more. I managed to block out the fear for a while but it came back in waves every time I saw or heard something, anything about cancer. Finally, after a little nervous breakdown at a doctor’s office, who couldn’t really understand my fear, I found some doctors who suggested having it removed. Luckily, it was benign. The lump was gone, but the fear is still there. Sometimes when I look back at this time, I feel stupid for having so much fear, because it really was nothing, it’s an irrational fear. But I can’t help it, I’m still scared. I don’t like examining my breasts, like I’m supposed to. I’m scared of finding another lump. Plus, I have fair skin (without make-up people keep asking me if I’m sick, because I’m so pale and have dark rings under my eyes – one good thing about it, if I ever wanted to take a couple of days off pretending to be sick, I just have to go without make-up). I’ve had numerous sunburns in my life and, unlike you, I wanted to be “part of the crowd” and get a tan under a tanning bed, until lots of new moles popped up on my arms and legs. I use sunscreen SPF 50 now and I try to stay in the shade, so I don’t get a fancy olive or golden tan either. Last year I had my first skin check and the doctor was done after what felt like a minute. It was so quick that now my mind keeps going: “What if she missed something?” I just don’t trust doctors any more like I used to when I was young. And I can’t handle uncertainty (But I’m also not sure how I’d deal with KNOWING that I’d develop a cancer in 10-15 years). Cancer is my biggest fear and I don’t think it’s irrational. And sharks, well, who isn’t afraid of them? Whenever I see a shadow in the water … it’s run (or rather swim, dog paddle, whatever you’re best at) as fast as you can.
I’m sorry, it feels like my comment is all about myself. I just wanted to let you know (like all the others before me) that I understand your fear. And you’re lucky to have doctors that take it seriously. I keep my fingers crossed that they’re wrong about their prediction of you getting another melanoma by the end of 40 (I never thought that one day I’d ever hope for doctors to be wrong about something). You deserve to turn 80.
Comment by Denise 2011 August 31 @ 3:59 pm